Charcot Marie Tooth Foundation of India

Welcome to the official website of the Charcot Marie Tooth Foundation of India. By accessing or using this website, you agree to comply with and be bound by the following Terms of Service. If you do not agree with these Terms, please refrain from using the website.

1. Purpose of the Website

This website is intended to:

• Promote awareness regarding Charcot-Marie-Tooth (CMT) disease
• Provide educational and informational resources
• Share publicly available research and clinical updates
• Support patient advocacy and community engagement
• Facilitate voluntary participation in initiatives such as the National CMT Patient Data Registry
• Share information about events, support activities, and Foundation initiatives

The website does not provide medical diagnosis, treatment, or emergency healthcare services.

2. Medical Disclaimer

All content available on this website is provided solely for educational, informational, and awareness purposes.

The Foundation:

• Does not provide medical advice or treatment recommendations
• Does not replace professional medical consultation
• Does not guarantee the accuracy, completeness, or outcomes of medical or research information presented on external sources

Users should always consult qualified healthcare professionals regarding diagnosis, treatment decisions, medications, therapies, or participation in clinical trials.

3. Research & Clinical Trial Information

The website may contain references to:

• Clinical trials
• Scientific publications
• Emerging therapies
• AI-based research approaches
• Global research initiatives

Such information is compiled from publicly available sources and is shared solely for awareness purposes.

Unless explicitly stated:

• The Foundation does not conduct, sponsor, manage, or endorse these studies
• The Foundation does not guarantee the safety or effectiveness of investigational therapies
• Responsibility for external studies remains with the respective institutions, sponsors, or researchers

4. National CMT Patient Data Registry

Participation in the National CMT Patient Data Registry is voluntary.

By submitting information to the registry, users acknowledge that:

• The registry is not a clinical trial or treatment program
• Submitted information may be used in anonymized or aggregated form for awareness, educational, statistical, advocacy, healthcare, or research-readiness purposes
• Information must be accurate to the best of the participant’s knowledge
• Submission does not create any medical, legal, or therapeutic relationship with the Foundation

The handling of registry data is governed by the Foundation’s Privacy Policy.

5. User Responsibilities

Users agree:

• To provide accurate and lawful information
• Not to misuse the website or attempt unauthorized access
• Not to upload malicious, harmful, defamatory, or unlawful content
• Not to interfere with website functionality or security
• Not to impersonate another individual or entity

The Foundation reserves the right to restrict access or remove content that violates these Terms.

6. Intellectual Property

Unless otherwise stated, website content including:

• Text
• Graphics
• Logos
• Awareness materials
• Design elements
• Educational resources

are the property of the Charcot Marie Tooth Foundation of India or their respective owners and are protected under applicable intellectual property laws.

External research papers, publications, trademarks, and references remain the property of their respective owners or publishers.

Users may:

• View and share content for personal, educational, or non-commercial purposes with appropriate attribution

Users may not:

• Reproduce, modify, distribute, or commercially exploit website content without prior written permission.

7. External Links

This website may contain links to third-party websites including:

• Research organizations
• Clinical trial platforms
• Hospitals
• Scientific publications
• Social media platforms

The Foundation is not responsible for:

• Third-party content
• Website availability
• Privacy practices
• Accuracy of external information
• Transactions or interactions on third-party websites

Users access external websites at their own discretion and risk.

8. Donations & Contributions

Any donations or voluntary contributions made to the Foundation are subject to applicable laws and internal policies.

Unless specifically stated:

• Donations do not guarantee services, treatment access, or research participation
• The Foundation retains discretion regarding utilization of contributions for awareness, patient support, advocacy, educational, or organizational activities

9. Limitation of Liability

To the maximum extent permitted by law, the Foundation shall not be liable for:

• Direct or indirect damages arising from website use
• Reliance on information available on the website
• Errors, interruptions, delays, or technical issues
• Decisions made based on external research or clinical information
• Loss of data, opportunities, or reputation

Website use is at the user’s own risk.

10. Privacy

Use of the website and submission of information are also governed by the Foundation’s Privacy Policy.

Users are encouraged to review the Privacy Policy carefully before submitting personal or health-related information.

11. Modification of Terms

The Foundation reserves the right to update or modify these Terms at any time without prior notice.

Updated versions will become effective upon publication on the website. Continued use of the website constitutes acceptance of the revised Terms.

12. Governing Law & Jurisdiction

These Terms shall be governed by and interpreted in accordance with the laws of India.

Any disputes arising in connection with the website or these Terms shall be subject to the jurisdiction of the appropriate courts in India.

13. Contact Information

For questions regarding these Terms of Service, please contact:

Charcot Marie Tooth Foundation of India
📧 connect@cmtfoi.org
🌐 CMT Foundation of India

14. Acceptance of Terms

By accessing or using this website, you acknowledge that you have read, understood, and agreed to these Terms of Service.